Diary of a Novice

A collection of diaries from the novices who volunteered to describe their
first-year experiences.
  As told by...
2009
Bonnie Rossander - Paddler with the 2009 Deas Divas crew.
2008
Judi Clark - Paddler with the 2008 Barnet Crew
2007
Carol Thorbes - Paddler with the Novice Crew “Staying Abreast.”
2006
Colleen Wong - Paddler with the Novice Crew “Abreast Oar Knot.”
2005
Diana Wort - The captain of the Tuesday False Creek Novice Crew “Abreast and Beyond.”
2004
Debbie Giroux - Paddler with the Tuesday False Creek Boat.
and
Donna Bell - Paddler with Amazons Abreast, the Wednesday False Creek Boat.
Our Stories
 
  • Anna duBois
  • Paul Smith
  • TREK
  • Remarkable Journey
  • Lorraine Krakow
  • Rome 2002

"Boob Story" 2008
Anna DuBois

1. How it all started

“Mmmm… Mrs Dooboyz, we’ll have to do the right one again. The doctor is not happy with this one, and he wants to have a better look.”

I am standing topless in the mammogram room, my boobs just released from the clutches of the bloody machine. And now this woman wants to put me through this torture again. Mammogram must be one of the most grotesque and ridiculous procedures a woman has to go through. Not only are one’s breasts pulled away from the body and then squashed first from top to bottom and then sideways, but one is also told to relax, “otherwise it won’t work”! This is my third mammogram, so I know the game, but every time I have one, I indulge in abominably cruel fantasies about the man (and it has to be a man!) who invented this contraption. I wish he’d have his balls pulled apart, stuffed between two plastic plates, squashed until he can’t breathe anymore and then told to produce a stiff erection – otherwise “it won’t work”!

I go through the whole thing again, and am told to wait some more. After a while the nurse comes back and says that the doctor has spotted something and wants to do an ultrasound. I wait some more. The ultrasound takes forever. The doctor goes over the same spot again and again, until my breast feels bruised and sore. Eventually he points at something on the screen and tells me that I have these three spots and he is not sure what it is but I’d better have a biopsy as soon as possible. He won’t say anything else, but faxes the report to my GP.

The next morning I am sitting, again topless, in the breast surgeon’s consulting rooms. He looks at the ultrasound, looks at my boobs, nods and says he isn’t sure what it is. But he sends me for a biopsy right away. I go downstairs and the kindly looking doctor tells me that he doesn’t believe in local anesthetic because he thinks it hurts more than the actual needle biopsy. He assures me that I’ll just feel a little prick, that’s all. By the time he’s done, I have invented a torture for him too. I wish I could take that very same needle, stick it in his balls, wriggle it until he screams in agony and then some more again, and then pat him on the arm and say in a soothing voice: “Are you OK down there?” No one wants to say anything to me, other than vague “I don’t know, I am not sure, let’s wait for the results”. And I just want to scream at them all – just tell me, tell me you think it’s cancer, tell me and put me out of my misery! I can cope, I am a big girl, I have three nearly grown up kids for Christ sake, I’ve been through a lot! Just tell me, I can deal with it! But no, they won’t tell me, because they are not sure.

All of this happens on Friday and I spend a painfully slow weekend waiting for the results. Finally on Monday afternoon I see the breast surgeon again. He has the results in front of him and he tells me that they are negative, but there is no joy in his voice. He says he isn’t convinced, he is worried and he doesn’t want to send me home without being totally sure that this is nothing. We agree that I should have an excision biopsy. I have to wait until Thursday. Finally Thursday arrives and I have the biopsy. However, this happens to be the week of the longest weekend of the year, with a public holiday on either end of it. So I will only get the results next Wednesday afternoon. I spend the next five excruciatingly slow days trying to keep myself busy. I don’t want to tell my children anything that would worry them unnecessarily, so I try to keep happy and breezy. However, by the time I see the surgeon again, I am prepared. Again, he has the results in front of him, and he tells me that they are positive, but this time there is joy in his voice. He says, its’ good that we did the biopsy because we’ve caught it, I mustn’t worry, it’s very early stage, it’s treatable, we have several options… I feel nothing, nothing at all. I just want to know what he’ll do with my boobs. He says I must have a mastectomy on the one side. What about the other? Well, he says, you can leave it there for now and we’ll monitor it, or you can have it removed.

- So, what will happen if I have only one side done?
- We’ll do the reconstruction at the same time, don’t worry.
- But what about my other boob, won’t it look different?
- Oh, don’t worry (He puts his hands on his chest). We won’t leave you with a Janet Jackson (right hand flips up) and an old one on the other side (left hand flips down)! We’ll give you a breast lift on that side.

We discuss various options, what it will be like to have fake boobs, what I must expect and so on. I still feel nothing. No tears, no fear, nothing. I’m only interested in my future boobs. Will I have any sensation in them? Well, he says, you will, but not much and, how should I put it? – your breasts are not going to be the most erotic part of your body. Eventually we agree on bilateral, skin sparing mastectomy with immediate reconstruction. He then tells me that I should see the plastic surgeon the next day, “and you will be able to, er… choose the size and… shape.. you want.”.

2. Choosing the new pair

My friend pops in the next day but I am not at home. She asks my daughter where I am and she replies: mom’s gone to choose her new boobs!

The plastic surgeon is very friendly, very sympathetic. We go through the whole thing again: various options for breast surgery, various options for reconstruction, and why I should have what he suggests. He shows me a PowerPoint presentation of before and after photos and then the time comes to choose my new pair.

I sit on the couch and the surgeon stands in front of me, studying my breasts. The nurse hovers around protectively. He looks at me for a while, then puts his hand on my good breast, the one that I could keep if I wanted to, lifts it a bit and says in a sad sort of voice, Mrs du Bois, when we do the implants, we won’t be able to achieve the same droop. Your new breasts WILL be higher… I feel like screaming again. I want to scream at him, you silly man, that’s the only thing I have to look forward to – perky tits! He then asks me if I want the same size or maybe something bigger? Or a bit smaller? I toy with the idea of Pamela Anderson “melons” or flat little “pimples” like Keira Knightley, but in the end decide to stick with the familiar B cup.

Now we have to discuss nipples. I am going to lose at least one, maybe both, when I have the mastectomy. The surgeon says, I mustn’t worry, they can reconstruct them for me and no one will even know they’re fake. And the colour of the areola? “Oh, we’ll just tattoo it. If you keep one of your nipples, we’ll match the other one, and if you have to have both new, you can choose the size and colour. You can have them brown, beige, pink, small or large. And the nipples too – you can have them flat, or pointy, in a ‘ready for action’ mode.” I think of endless photographs of Victoria Beckham and her hard “tennis balls” with nipples at some impossible angle, always pointing in different directions, always ‘ready for action’ and shudder at the thought. But if I want, I can also have boobs without nipples. One can buy stick-on nipples for special occasions, say, for an evening out. As he says that, I have visions of my stick-on nipples getting unstuck and ending up on my belly or somewhere else, maybe on the left cheek of my bum. The thought is too awful and I tell him I want the whole thing – new boobs, new nipples, new everything.

He proceeds to explain how they’ll go about giving me this amazing, totally symmetrical, perky, non-sag bust. They’ll insert the silicone implants under the chest muscle and leave them there to settle for a month. Each implant has a little pouch with saline solution. After four weeks, they’ll start inflating the implants to stretch the chest muscle and the skin by gradually adding more saline solution to them. They’ll do it over a few weeks until I end up looking like a freak with a bust that starts somewhere near the chin. As the nurse put it, “you will feel as if you are walking around with two upside-down Tupperware dishes in your chest.” Nice… They’ll leave me with the Tupperwares for THREE months. But after that they’ll take away the extra saline solution, remove the tubes, make the nipples, tattoo the areolas - et voila – a pair of completely natural looking, soft, slightly drooping, yet totally fake boobs!

3. Getting ready

Now that it’s official, I have the dreaded C-disease, I start getting advice from everyone. Some say I must start taking arnica, others advocate vitamin C, yet someone else says I must stop eating all meat. I listen to it all but do nothing. I trust my doctor and he hasn’t mentioned anything. Until he does, I am not changing anything. He did say though that I should stop smoking and I have. And I feel more distressed about it than about cancer or losing my breasts! Cigarettes have been my companions for thirty years now. They’ve seen me through various traumas, from relationships, to death, divorce and parenthood. They’ve kept me sane and happy and they’ve been my solace in difficult times. Theirs was the most enduring relationship I’ve ever had in my life. To give them up now, when I need them most seems incredibly cruel. I spend a week contemplating the very idea of not smoking and then quit with the help of Zyban. It takes away the chemical craving, but I still miss the cigarettes, I miss them badly, miss them every day, miss them like I would miss a really good friend. But I will not smoke again.

People keep on asking me how I feel, it must be dreadful, you must be devastated, they say. No, not really. In fact I don’t feel much of anything. The cancer itself does not cause me any discomfort, and I believe my doctor who told me that I have a 98% chance of complete recovery. So, what’s the big deal then? I do not feel any sudden spirituality or religious awakening, not at all. After all, if someone is diagnosed with diabetes, surely they don’t come over all religious and spiritual? They probably think, shit, I won’t be able to eat my favourite chocolates! Well, it’s the same in my case – I won’t smoke again. Breasts are not like arms or legs, you don’t need them to walk or make a cup of tea, do you? So if you have to lose part of your body, then breasts are best.

I think a bit more about this whole thing and come to the conclusion that there is only one thing that really upsets me, and that is the fact that because I don’t have a partner, I will not get a chance to have one last go, as it were, with my old pair. I do feel sad about it, but can’t find any solution to this problem and can’t find a volunteer among my acquaintances. How does one go about asking a male friend or acquaintance something like that? Will you please have sex with me, just this once, without any further complications and just concentrate on my boobs? And please don’t think it’s going to lead to a relationship; I don’t want one, not with you! Wouldn’t work, would it?

Then, one day when I am crawling in the afternoon traffic on my way home from work, I have a major panic attack: how will I ever have sex again with those fake jobs attached to my chest?! Post-divorce dating is bad enough as it is. All this dancing around: his children, my children, his baggage, my baggage… Can he cope with mine, can I deal with his? Do you like Bob Dylan? What, you don’t like Bob Dylan? But he is IT. How can you not like him?! It seems Bob Dylan can make or break a potential relationship at best of times. Now, add to all of that a pair of fake boobs and the situation seems pretty dire. I get home in a state of complete desperation. I talk to my surgeon about it, to my GP, to my family and friends and all of them give me the same sanctimonious advice: beauty is from within, the right man will love you, fake boobs or not, etc, etc… Ya, sure. They don’t have to contemplate telling some near stranger that the very perky, cute pair of boobs that attracted his attention in the first place is actually fake!

A week before surgery a very well meaning person tells me that I should spend some quality time with my boobs and mourn them properly before they get the chop. Now, how does one spend quality time with one’s own boobs? I ask for suggestions and they range from taking my boobs for a bit of airing in the garden to flashing them at passing motorists on my way to the hospital. I am told I should thank them, photograph them, fondle them and say goodbye to them. In the end I decide to just let them hang in their usual place and to look forward to the new pair. The time for surgery has come.

4. Waking up

I wake up flat on my back. Everything swims and I can’t breathe. Not at all, I can’t, I just can’t breathe. I try taking little, shallow gulps of air but it doesn’t help – with every bit of breath I am stabbed somewhere in my chest, under my arms, in my back. Maybe if I stop breathing the pain will go away. That doesn’t work either. Someone says, she’s struggling, give her the oxygen mask. I touch my chest – it’s completely hard and unbearably, unspeakably sore. It also doesn’t belong to me. I hear my friend’s voice: ag, shame, you are struggling there a bit, aren’t you, girl… Ya, just a bit. The night is interminable. I am given crushed ice, morphine, more ice, something in the drip, an injection. The chest is still not mine, it just sits there, or rather relentlessly suffocates me. I want to tear it off, the whole chest, the new boobs, the drips, everything. I just want to breathe and go to sleep. My legs irritate me. They are hot, but I can’t say anything to anyone because it hurts to speak. They are encased in the blanket, which is tucked very tightly under the mattress. The more I wriggle it, the more the nurses tuck it in, making me “comfortable”. It goes on like this for ever. Eventually 5am arrives. It’s the official beginning of the first day of the first week of the first month of my cancer treatment.

The dressings are changed the next day and I get the first chance to have a look at my Pamelas. They are beautifully round, very hard and start somewhere under my arms, closer to my back rather than my front. They also have no sensation below the nipple line. None at all - like touching someone else’s body. I can see my finger gliding along the scar and below it in circles, but I feel nothing. It’s not even upsetting, just very, very strange. The nurse is worried about me, she thinks I might start crying, especially when I see my right breast, the one without the nipple. But I find my new breasts utterly fascinating and only wish they weren’t so stiff. I caress them, discovering the sensation boundary, touch the scar and try to imagine what they’ll be like in a few months’ time. I think that even now they are rather gorgeous, perky little things. It’s just a pity the surgeon left one nipple in place, because now all he’ll do is match the new one to it. Had I lost both nipples I could have chosen completely different ones – small and brown, or huge and pink? Now it will just be more of the same…

The woman across the room from me had her left breast removed on the same day as I had my operation, but opted not to do reconstruction. She says the Lord knows his ways, he’s chosen this path for her and she will not complain. She speaks on the phone to family, colleagues, friends and fellow parishioners several times a day. It’s the same conversation every time: “I was on such a roller-coaster, one day up, one day down, but the Lord knows what I can take, he has his reasons. That’s what I tell myself, he is there for me, he will guide me. When I start feeling sorry for myself, I just tell myself, don’t be silly, woman, remember the good Lord, and look at Mrs du Bois there, across the room, she is so brave, she lost both sides, we must pray for her. I get my strength from the Lord and from Mrs du Bois. She doesn’t complain, so I must not complain either. Yes, I was on such a roller-coaster, but the good Lord provides – I haven’t had to pay even once at the coffee shop downstairs this week – someone has paid for me every time. The Lord truly provides.”

5. Tests

Day five is for tests. All goes fine until the bone scan, which involves having to lie flat on my back on a very narrow stretcher for half an hour. By the time it’s over I am in such pain that I can’t sit up anymore. The assistant props me up but now I can’t breathe. The boobs, drips and bandages are crushing my chest again. The porter comes with a wheelchair to take me back to the ward. I can’t take the pain anymore and start crying. Silently and with grim determination, the porter pushes me back to the hospital. Past the construction workers, past the visitors, along the street, through the car park, next to a gaggle of nurses on their tea break… I cry, clutching the hospital blanket. I don’t know what’s worse – the pain or crying in public. I don’t do tears. Crying is for sissies, for little girls. I am big and strong and I will not cry in front of complete strangers! But I do, all the way to the ward. As I am wheeled back in, the nurse on duty sees me and shouts, ag, nee, man! Have they made you sore?! I am put back into my bed, everyone fusses over me, offering painkillers, sleeping pills, morphine, tea, counseling. I want none of that. All I want is to stop crying, but I can’t. The more help I am offered the more I cry. My GP phones: what’s wrong? Why are you crying? Are you in pain? Yes, no, I don’t know, please stop me crying! I don’t want to cry anymore! But you can, she says, crying is good. I don’t want to cry here, I want to cry in my own bed, I don’t want to cry at all! What if I never stop!? No, she says, I can tell you, you will, you will not cry forever, so please go ahead and cry, it will make you feel better. But I don’t want to! It gives me a headache, I don’t want other people see me cry, I never do that!!! You can, love, she says, you can, it’s OK. Today you can. I am giving you permission. Two hours later, when my children come to visit me, I am puffy-faced, exhausted, but calm. My GP was right – I did stop crying.

The next day I am allowed to go home. The surgeon comes to check my new boobs before I leave, and I ask him why the right one is smaller than the left. He says, that’s where the cancer was, so we took a bit more on that side, but don’t worry – we’ll pump you up! Reassured, I take my Pamelas, get dressed and finally leave the Lord, blood pressure machines and friendly nurses. It’s time to learn to live with my new body.

6. Birthdays

My treatment is punctuated by birthdays. I have the mastectomy on the day my daughter turns 20. We have a celebratory breakfast for her before I go to hospital and in the evening she throws a party, but tells me later that she spent most of the evening just waiting for the phone call from the hospital to tell her that I am fine.

A month later it’s my own birthday and I decide to treat myself to a new bra for my semi-reconstructed and newly expanded boobs because my old ones are anyway too small now. I ask to be measured and to my absolute horror am told that I now have a D cup! I feel like crying – I just want my puny little B-cups back. I don’t want a huge bust that travels ahead of me like some kind of bouncy appendage. I try covering myself up with multiple layers but the more layers I put on, the bustier I look. I try stooping so that the bloody udders don’t stick out so much, but that doesn’t work either, because it hurts my back. Finally I resort to the ‘celebrity’ trick: I put on my sunglasses. I also remind myself of the breast surgeon’s words: “But you don’t understand - WE like them big!”

Six weeks after the surgery, having had a couple of infections and gone back to hospital to treat them, I go overseas for my mother’s birthday. Before I leave the breast surgeon gives me a letter stating that I have metal in my breasts because he’s had patients who’d set airport alarms off with their semi-reconstructed boobs. The ports through which the new breasts are stretched can apparently do that. I imagine having to tell some highly agitated security officer in London that I am not a terrorist, I just have prosthetic tits that go ‘ping!’, the mayhem it will cause, the security alert, dogs and armed police surrounding me… This is enough for me to want to cancel the trip, but I go and for the first week things are fine.

The day of my mother’s birthday party I notice what looks like a small bruise on my left breast, with skin peeling around it. Mildly worried, I carry on with the party preparations. That evening, when I get ready for bed, what was a small bruise earlier in the day is now an angry purple wound which splits open as I undress. It oozes yellow gunk and seems to grow in front of my eyes. Terrified, I text my plastic surgeon. He phones the next morning and tells me to see him the day I arrive back home. I go to him straight from the airport. For a split second I see concern on his face, real concern and surprise. But he quickly regains his usual unflappable manner and tells me completely calmly that what I have is called an extrusion and it doesn’t happen very often but there is nothing to worry about, we’ll just have to take this breast out and replace it with a different one. But won’t it look different from the right one? “Don’t worry”, he says, drawing a straight line in the air, “we’ll pump you up and adjust both sides until they are exactly symmetrical, just like a wheel alignment.”

The additional surgery delays chemotherapy but I finally start it two weeks later. Just before the second chemo session, the day of my twins’ eighteenth birthday, my hair falls out and all I’m left with is patchy stubble. We go to a steak house anyway where the boys gorge themselves on mountains of meat and coolly order their beers. I feel completely naked but can’t bring myself to wear either a hat or a wig. Somehow it seems even worse. When I take a shower the next day I realise that it’s not just the hair on my head that’s gone. Now I really look like a half-plucked chicken. Thankfully there are no more birthdays this year so nothing can go wrong anymore.

7. Chemo

I am lucky – I only have to have four chemo sessions instead of six that were mentioned originally. Four is enough though. The worst part of chemo is not the actual procedure, but the waiting in-between, the dreaded anticipation of the nausea, the fatigue and cortisone-induced hot flushes that last for days.

Chemo sessions themselves are a bit like a little drug party in the middle of the day. Everyone sits in nice, comfortable armchairs, attached to a drip. The room is light, with plants, stupid magazines, and a TV set for sports fanatics. Chemo nurses scurry around, changing intravenous bags and adjusting the speed of the drips. When I arrive for the first treatment and install myself near a window, I notice a rather cute looking guy in the next armchair. He has an unfortunate, high pitched voice, but as long as he keeps quiet, he is a real pleasure to look at. I later tell my friend about him and she replies: “That would make an interesting answer to the question – so where did you, guys, meet?”

Second session arrives and my friend starts texting me – is the hotty there, have you spoken to him, did you get his number? Sadly he is not there; instead there is just a bunch of older and rather miserable patients. But then a former colleague arrives with his wife. When I tell him that I am here for breast cancer treatment, he beams, waves towards his wife and says, “So are we, so are we! Welcome to the club!”

When I come to the third session, I am in luck – the cutie is there and there is an even younger, cuter hotty too! This is going to be a treat – I can sit in my chair and feast my eyes on those guys! Who cares about chemo. But then they start talking… and, oh dear, it’s all about that strange game that people in Britain and its former colonies find so exciting. The one where grown up men dressed like doctors stand around on a green field, then one of them takes a very small ball, rubs it against his crotch, spits on it, rubs it against his crotch again or against his bum, and then throws it in a windmill kind of motion. Various pretend doctors run around for a short while, then stop and the entire procedure is repeated. If I didn’t know it was a game, I would honestly think it’s some kind of worship.

The last chemo session is boring – no hotties, no friends, just the anticipation of the nausea and the unbearable fatigue that the treatment brings. All that’s left for me now is to get my final-look boobs and my hair back. After that I’ll have my life back too.

8. The Belles

“Power up! One, two, three! Twenty percent, fifty percent, four, five, push it, push it! I want aggression, ladies, aggression!”

What am I doing here!? How did I get myself into this? I can’t swim, really, really dislike any team activity and in particular team sport, and as for exercise, I hate it with a passion. I belong to the tribe of people for whom exercise is something that happens to other people and turns them red in the face, hot, sweaty and smelly. It also makes them cranky as they complain about aching muscles and stiff joints after a particularly vigorous game of some sort, usually involving a ball. We, the non-exercisers, are happiest curled up in bed with a book in one hand and a cup of coffee (or a glass of wine) in the other.

So what am I doing here, at the Waterfront marina, with a bunch of other women in a narrow boat that sits perilously low in water, and with some guy shouting from behind about aggression? My arms are sore from paddling, my bum is hurting from sitting on a hard bench and my heart and stomach lurch every time the boat wobbles. And to top it all, I am sweaty, hot and red in the face!

Well, last year’s cancer treatment had left me with limited mobility in one arm and with so little energy that even the thought of walking to the kitchen to make myself a cup of tea made me tired. So although my oncologist was pleased with the actual treatment and told me that as far as she was concerned, I was perfect, in reality I had to do something to rediscover my body and get some strength back.

Exercise is of course the answer in this situation but what kind? Ball games are out – they require too much hand-eye coordination. Going to the gym to impersonate a hamster in a wheel is not appealing either. On the other hand, something new, different, possibly fun and preferably challenging could just be what I need. And then I remembered one of the oncology nurses mentioning dragon boat racing. Family and friends said, you are mad, you can’t swim, you are weak, cancer is enough of a challenge. But they are wrong. Cancer is not a challenge. It’s a calamity, a pain in the arse, but challenge it ain’t. Webster dictionary defines challenge as a stimulating task or problem, and cancer is anything but stimulating, that’s for sure.

On the other hand overcoming my fear of water, learning to do things in a team, possibly acquiring a taste for physical activity – and maybe even achieving that ever-elusive flat tummy that all women dream about - is indeed a challenge. A huge one and maybe a somewhat overambitious one, but a challenge it is. And this is why I find myself on a wobbly boat with other breast cancer survivors who are all part of the amaBele Belles dragon boat racing team.

The amaBele Belles (amaBele means ‘breasts’ in Xhosa) team was started in 2006 by Pam Newby, the team’s coach, with the help of two reps from a pharmaceutical company that produces cancer drugs, who advertised the idea among oncology doctors and patients. At the first paddle the team had a full boat with BCS women, some clinic staff, one surgeon and five paddlers from the Paddlesnappers and Mujaji teams. The amaBele Belles’ main purpose is to introduce breast cancer survivors to dragon boat racing, to show them that physical activity can exist after cancer, and to provide a support group. Unlike other support groups though where women get together purely to swap breast and treatment stories, the Belles, as they call themselves (or should I say ourselves?), get together to paddle. And in the process they may also occasionally and incidentally talk about their breasts and treatment options.


The amaBele Belles

There are only two conditions to be part of the team – one has to be a female and to have had breast cancer. So the range of shapes, ages and fitness is quite staggering: from someone like me, barely able to paddle for more than a few minutes without getting out of breath to superfit women who don’t even break into sweat after an hour of training! There are also a couple of supporters who come along. Usually they are either people living with other types of cancer or attached males – brothers, boyfriends or husbands who get roped into giving a hand. In 2006 the team even went to the first BCS dragon boat world championships in Singapore. The newest team on the water, the Belles had only been paddling for five months, winter months at that, yet they made every major final and came home with a silver medal and a trophy for coming second in one of the three categories.

And so I find myself doing the unthinkable: I am participating in a team sport and one that takes place on water! It makes me tired, it makes me sore, but now that I’ve started, I don’t think I’ll stop even though all this water is still frighteningly close. I’ll power up and I’ll give it the twenty percent extra push that Martin wants from the team. I will also get sweaty and hot, and who knows – maybe I’ll even go to China with the Belles next year?

Moving on

I never get to China, but something else happens to me. I move to a different country, start a new job and try to put the whole cancer episode behind me, despite the fact that because of a hospital infection I end up with only one partially reconstructed breast.

Then one day a man asks for my number at a café. At first I think that this is ridiculous and I must just forget about it. But he is really sexy and he smiles, and gives me some cheesy compliment about my eyes. I give him my number and go back to work, almost angry at myself. What am I going to do now? What if he wants more than coffee? What if I like him, he likes me? When do I tell him? I google things like “intimacy after breast cancer” but none of the websites have anything to say about dealing with a new partner. They all give the same boring and tired advice to husbands: love your wife’s new body, be patient, discover new ways of loving her, etc, etc… Nowhere is there anything about telling a stranger who’s made it pretty clear that he thinks I am sexy, that certain, seemingly essential parts of this sexy me are missing. And once I’ve told him, then what? How do I cope with him wanting to run a mile from me? Or how do I actually go about having sex with this mess on my chest? Do I cover it up, pretend that it’s not there? I have no answers.

I spend a few days thinking about it and decide to tell him next time I see him. This way, if he is not interested in “damaged goods”, I will have wasted only one date on him! When we meet he flirts outrageously, and I feel the panic rising and think that I am actually going to cry. Finally I tell him, waiting for him to say something disappointingly polite and take off. Instead, he clicks his tongue, grins and replies: but there are other parts of the body to focus on.

And that is that. My initial instinct was right: if you have to lose some part of your body, breasts are best. You don’t need them to walk or to make a cup of tea. And it turns out that you don’t need them for sex either. They are completely superfluous.

Paul Smith's Speech, Australia, October 2007
The story of "The Sandy Smith Global Race"
 

Thank you so much, and thank you Michelle Hanton and your marvellous group of organizers of Abreast in Australia for renewing this wonderful tribute to Sandy. I know Sandy is very proud to have been a part of this event, but also more than a little embarrassed by the whole concept of a race named in her honour.

I would like to talk for a couple of minutes about two things: Sandy, and what she meant to me and perhaps to some of those who had the joy of knowing her; and to dragon boating, and what I think it meant to her.
Shortly after Sandy passed away, in February 2005, I faced the challenge of deciding on a suitable epitaph for her grave marker. The task was made even more difficult because Sandy didn’t leave any clues as to what might be appropriate:

  • though Sandy enjoyed reading, it wasn’t one of her passions, she didn’t have a favourite author;
  • she loved music, but didn’t have a favourite songwriter;
  • she certainly didn’t have a favourite political leader;
  • and although she was a regular churchgoer, she didn’t have a favourite biblical passage.

So it was left entirely to me to come up with the perfect phrase.

Sandy was a person who appreciated simplicity, so I knew I had to keep it simple. I thought a lot about what her life meant to me, and what I thought her life meant to others. And in the end I opted, with the support of our two daughters, for three simple words: For others always…

It’s the way she lived her life.
Everything she did seemed to be for others in her life:

  • for me,
  • for our daughters,
  • for our extended families,
  • for her physiotherapy patients,
  • for our neighbours,
  • for the school band program,
  • and so on.

For others always… I’ll come back to this phrase in a moment.

Let me switch gears now and speak about dragon boat racing, and breast cancer survivors.

Shortly after Sandy was initially diagnosed and then treated for breast cancer, I was asked by my company to transfer from Toronto in Central Canada to Vancouver on Canada’s West Coast. (For those that aren’t aware of just how big Canada is, that’s a distance of about 3400 km, or about 3 ½ times the distance between Brisbane and Sydney.)

Neither of us had ever lived in Vancouver, nor did we have friends or family there. But at least I had a job, co-workers, and pretty soon lots of business contacts. For Sandy, however, loneliness, and I’m convinced now, depression, were all that marked her arrival during a typically wet and dreary Vancouver winter.
It wasn’t until she heard about, and eventually joined Abreast in a Boat during its second year, that Sandy started to come out the deep funk in which she found herself. Abreast in a Boat gave her purpose, direction, support, and eventually many, many friends both locally and around the world.

Abreast in a Boat, and the many, many other teams that have been established everywhere, have used a variety of symbols to inspire and invigorate breast cancer survivors for around the world. Let me point out a few of them:

  • the dragon itself … and all of you have slayed it well.
  • a big clumsy boat – too big for any one person to handle, it achieves movement and direction only as a result of the collective efforts and support of a team.
  • the colour Pink – the symbol of breast cancer awareness.
  • the flower ceremony – both a memorial for those who have not survived, and a challenge to all who witness it that this terrible disease must be beaten.

The organizers of 2005 Abreast in a Boat’s 10th Anniversary regatta in Vancouver created The Sandy Smith Global Race and whether intentionally or not, it too has become for me, a great symbol.

When you stop to think about it, the Sandy Smith Global Race is a silly idea.

Randomly place a bunch of women who have, in many cases, never before even met, in six dragon boats and set them off in a single event to win a trophy that none of them can even take home. Now come on ladies.

In a man’s world a global race would be a race in which only the fiercest competitors would be able to participate. There would be national events intended to ensure only the very best competitors from each nation were sent to represent them. There would be preliminary rounds, finals, and then, like the Olympics, the very best six teams, who have been working together for months, if not years, would get the chance to achieve glory for their nation. Now that’s a global race!

But that’s not The Sandy Smith Global Race.

Instead, everyone gets the chance to participate, and you get into a boat not because of skill or prowess, but because in many cases your teams selected you for reasons of their own. When you entered the race you weren’t the team from Canada, or Italy, or Australia. You were simply a member of boat number two.

And when you got to the finish line first, even though you had paddled your heart out, you were glad not for winning, but for having had the chance to participate.

And this is what Sandy Smith valued about dragon boating. It wasn’t about winning, it was about participating. It wasn’t about personal success, it was about welcoming women from many backgrounds, ages and skill levels to share an experience that would enrich their lives, to give breast cancer survivors a sense of direction, purpose and above all, a sense of living.

Sandy’s epitaph is: For Others Always…

It’s my hope that this “Abreast movement” in which she, and we, her supporters, were so richly rewarded for having participated, will remain faithful to those original goals: to give those women everywhere who need help slaying their dragon a chance. Not to win… but to participate.

On behalf of my daughters Lauren and Sarah, I want to thank the organizers of Abreast in Australia. We are so honoured that you have chosen to help us remember Sandy in this way.

Thank you all.

Paul Smith, Australia 2007


Paddling Away From Breast Cancer
Article in TREK Magazine, Fall 2007 by Marlisse Silver-Sweeney
 

LAST JUNE AT THE ALCAN DRAGON BOAT Festival in Vancouver, dozens of teams and bystanders lined up to watch one inspiring race. It wasn't the finals, or the infamous "Guts and Glory" a-k dredge. Only one man was in this race, amongst the hundreds of women. And even though the participants had been training for months - years in some cases- no one particularly cared who won.

As the hundreds of survivors got off their boats from the Breast Cancer Survivors Race, they were followed by Don McKenzie MPE'72, MO'77, founder of the dragon boat breast cancer survivor movement and the only man allowed on board. A myriad of pink stormed out onto the dock and through the kilometer long arch way formed by the paddles of other team members. The carnations they had dropped into the water to commemorate the women who haven't survived the disease floated in the distance, but the visceral cheers, laughter and tears of the women on the dock made it clear that they were winning their race against breast cancer.

 
Abreast in a Boat Team 2007
 

Margaret Hobson BEO'64, MEO'79, is a retired teacher and current president of the Abreast in a Boat Society.

Margaret joined Abreast in a Boat in 1999 after undergoing breast cancer treatment the previous year. "I could hardly wait to finish surgery and treatment so I could join the team" she says, matter-of-fact, as if it's like waiting for a broken bone to heal. Paddling a dragon boat on False Creek however, isn't a walk on the seawall."

I thought I was going to die the first couple of practices. I was very fresh out of treatment and I had started going to the gym but it was not enough.

"Eventually though, the sore muscles and the strenuous exercise worked itself into a routine, and Margaret got more from her dragon boat team than the need for a hot bath twice week.” I never joined any support groups but I think Abreast in a Boat gives you one. If a person has a problem related to a medical condition there is someone on the boat who knows something about it.”

That someone is generally Dr. Don McKenzie. Dr. Don (as he's called) started the first dragon boat team for breast cancer survivors in 1996. Abreast in a Boat was part of his plan to combat the idea that upper body exercise in breast cancer survivors would increase their chances of developing lymphedema. Besides lab and hospital-based studies, Dr. Don wanted to develop a "visible demonstration that women treated for breast cancer could do strenuous, physical upper body exercise and not develop lymphedema.”

The first team, made up of 24 breast cancer survivors, started his study. The women trained for two months in a gym before getting in the boat, and they were measured and tested. Starting slowly, they gradually built their strength and competed at the Alcan Dragon Boat Festival. Dr. Don's hypothesis was correct. "People got stronger, people got fitter, and they showed that they didn't develop lymphedema.

"But what happened afterwards was a huge surprise." It got totally out of control," he laughs. What started as a study of 24 women turned into a movement of thousands of women worldwide including teams in New York, Tasmania, Singapore, Poland, Dubai, Cape Town and now six teams in the Lower Mainland alone, with Dr. Don coaching a new novice team every year. "It went way beyond the physical things we were doing. When you push off from the dock at False Creek we're all in the same boat. This isn't about cancer anymore. It's about exercise and health and the rest of your life. When we push off we're paddling away from breast cancer."

And then there's the sisterhood.

"We own a lot of pink clothing," Marg says, and I remember the Ten Years Abreast Festival in Vancouver two years ago. Pink boas, wigs, shirts, shoes, dogs and husbands were littered across the park, proudly removing any possible stigma from the disease.

"There is a real bond among breast cancer survivors." Once, Margaret tells me, she met a woman at a party and they started talking about Abreast in a Boat. When Margaret came home that night, there was an e-mail from that woman telling her that she had just been diagnosed with breast cancer and hadn't told anyone. She wanted to join the team.

"Just the fact that we're out there, we're paddling, we're vibrant and enjoying life, I think it's contagious. We certainly spread the word that there's life after breast cancer." And spread the word they have. These faces of the disease are consulted on any big decisions by the Canadian Breast Cancer Foundation, they're helping women around the world come to terms with a serious illness and they're tough competitors. From a medical study to a world-wide movement, these women are Busting Out (a team in Ottawa), Bosom Buddies (a team in Nova Scotia), and are Paddling for Life (a team in Powell River). They're simply inspirational.

Marlisse Silver-Sweeney is a 4th year student in the Creative Writing department - 2007

A Truly Remarkable Journey With The Dragon Spirit
Story compiled by Michelle Hanton, National Coordinator, Dragons Abreast Australia
in collaboration with Joanne Petterson
 

Most people involved in dragon boat racing are aware of the ‘Pink Ladies’ – the breast cancer dragon boaters that paddle their message of awareness around the globe.

This year, in Australia, we believe that Jenny Petterson, a BCS paddler, has made history, hers is a remarkable story of courage and determination! Jenny Petterson and her sister Joanne are twins.

 
Jenny on the left, has the pink plait ...since she had
no hair of her own!
 

In March 1997 at the age of 35, Jenny (but not Joanne) was diagnosed with aggressive breast cancer. In November 1999 the cancer was found to have spread to 10 tumours across each of her lungs and a few years later a large tumour was found in her abdomen. She has undergone 3 operations including a mastectomy and removal of all lymph nodes in one arm, 2 six-month courses of chemotherapy; radiotherapy; several types of hormone treatments as well as a wide range of alternative therapies. She has been through the mill.

Jenny & Joanne were introduced to dragon boat a little over 3 years ago and were immediately hooked! They paddle together with both local NSW club Port Hacking and Dragons Abreast Sydney. Indeed they do just about everything together!

In January 2003 Jenny received a disappointing CT Scan and was told to wait 3 months for more scans for a comparison then a decision would be made whether or not she should commence a course of chemotherapy. This scan 3 months later showed a new growth in her abdomen and an increase in the size of the 3 remaining lung tumours.

During this 3-month period Jenny continued to paddle. In March 2003 she competed in the South Pacific Inaugural Breast Cancer Regatta in Auckland as part of the Australian Team, followed by the New Zealand Nationals in Wellington. Jenny then competed with Dragons Abreast in the Nationals in Adelaide in April 2003, whilst her sister Joanne paddle with the NSW State team and won a berth in Team Australia. On returning home Jenny received the news that she would need to undergo intensive chemotherapy and was later advised that she should not go to Shanghai (before the change to Poland because of SARS) for the World Championships for fear of infection.

From May to November 2003, Jenny took part in a clinical trial and the side effects of the chemotherapy meant she was not able to paddle. During this time Joanne was training with the Australian Women’s Team to compete in Poland, which Jenny would loved to have gone to watch but could not travel with such a low immune system. She suffered an infection and was hospitalised for 8 days and was discharged just in time to come out to the airport to farewell the Australian team for Poland.

Jenny came out to each of the 4 time trials the Australian Team had at Penrith and videoed all the races of the teams and got some great footage which was used to analyse the teams’ techniques. Looking back she says she doesn’t know how she was able to manage what she did when she was feeling so unwell.

When Jenny completed her chemotherapy in November 2003 she couldn’t get back into the boat quick enough and paddled in the Australian Masters in Canberra in November 2003. She took the paddling easy in the first 2 months following the chemotherapy while her body was recovering. The post-chemotherapy scan showed that the abdominal tumour has completely gone but the size of the lung tumours had only partially decreased.

Jenny attended a Dragon Boat Training Day on Australia Day this year and since then she has ramped up her training to 6 paddling sessions and 3 weights sessions at the gym each week. Her oncologist told her she can exercise as hard as she wants to now and the latest scan, three months after treatment has shown a significant decrease in the size of the lung tumours. Joanne now has her paddling and gym-buddy back!!

Jenny was back in the stroke seat for Dragons Abreast at Chinese New Year in February. She is feeling so strong now that she trialled for the NSW State Teams to compete at the 2004 Nationals in Perth and was placed 41 out of 60 women and earnt a place in the State Women’s B Team as well as a place in the Mixed Masters Team.

We are all so proud of Jenny, she is an absolute inspiration to us all, in particular the ladies in the Dragons Abreast Teams who can see just how strong, positive and motivated she is after all the setbacks she has had. Only a few months ago it would have been quite unbelievable to imagine she could have come this far in dragon boating after everything she has been through, particularly during last year. Jenny Petterson doesn’t need a medal, she is truly a champion, like every BCS, in every sense of the word but a ‘little bit of tin’ will be icing on the cake!

What a wonderful story of the human spirit striving to overcome the worse that life cam throw at it. Jenny’s story is typical of our BSC paddlers, so when they take a little longer to get to the Marshalling area to load their boats, take a bit more time to race down the course and disembark and maybe put the Regatta time table behind just a little; think of Jenny and all that she and the other BCS paddlers have gone through – just to be on the Start Line. Their Gold Medal is to be there – not the winning, the taking part.

Michelle Hanton and Joanne Petterson - 2003

My First Ever Dragon Boat Race at Deas Slough
Lorraine Krakow
 

I don't think there are enough adjectives in the English language to describe the gamut of emotions that I experienced at Deas Slough on Sunday. This is my first season as a paddler, preceded by three years of ill health. Although I had been in the gym off and on since October, I started the season in lousy shape. But ever since I saw the video of Abreast in A Boat at the Cancer Agency last spring I have had a dream, an intense vision of myself on the water, paddling my heart out. My family was skeptical; "just watch me", I proclaimed. The first month was a struggle to keep my spirits up. I was the worst paddler on the boat, always pulling my paddle during pieces - dogged by sharp shoulder pain and breathlessness. I often cried on the way home on Saturdays, thinking I would never make it. I feared coach Ruth would realize how hopeless I was and kick me off the team.

Captain Jenny assured me that she would never let that happen. Ruth never gave up on me. One practice she corrected me at least ten times, and I felt blessed! I took it as a sign that she thought there was hope for me. A very good friend said to me "don't think of yourself as the worst on the boat, think of yourself as one of a small group of amazing women who had the courage and commitment to get out there and try it. You are a winner just by being on the boat!" I began to get stronger and better at paddling. I quickly grew to love my team of wonderful paddlers. Some nights being out on the water was so lovely it moved me to tears. When we began practicing race starts the adrenaline rush was orgasmic! Still, I didn't think I would be ready to race this year. I told myself it was OK for me to be on a two year project. Kathy convinced me at the Keg one night that I really could race at Deas Slough and be OK. By then I had managed one three minute practice race without pulling my paddle. I reasoned that I could probably do one race, but not three, in a day. Ruth never said a word. So I didn't either.

I arrived at Deas Slough on Sunday more excited than I was nervous for the first race. The warm up was fun, - we were all in jubilant moods it seemed. Ruth was amazing. She really wants us focused "in the boat" and she helps make that possible for us by being so intensely focused herself. She spoke with such authority and self confidence that all of our nerves and scattered energy evaporated and there we were: all together holding hands and visualizing ourselves going through a race. The most wonderful moment for me was leaving the dock to paddle out for the first race. Our wonderful drummer Donna called "PADDLES UP! And for the first time, as we drove our paddles into the water, we heard the boom, boom, boom, of the drum. My heart nearly burst through my chest I was so thrilled! The race was exciting and exhausting and was over in a flash, just like they told us it would be. During the race I followed Ruth's advice and just thought about each stroke in the moment; this stroke, this stroke, this stroke. There was one brief moment when I suddenly thought, " Oh my God, where the F---is the finish line", but I caught myself and went back to "this stroke, this stroke, this stroke". Later Ruth told me she had seen my brief faltering and quick recovery from her vantage point on shore. It didn't matter that we hadn't won, or even came second, we had raced a good race, and our coach was proud of us. I went on to race two more times that day. Each time was easier than the time before, each time I was more nervous than the time before. The last few strokes of the last race I tried harder than I have ever tried anything in my life. I finished the race in a heap in the boat and couldn't pick up my paddle for several minutes. When we walked up from the dock we were greeted by a huge crowd of cheering happy faces, and an arch of paddles had been formed which we walked through. My dream had come true, my vision was a reality. I kept saying to myself "you did it gal, you really did it!" We regrouped and Ruth was so happy with us, and we were all tired and proud. It took an hour before the tears stopped trickling from the corner of my eyes. I really needed to howl, sob, shout for joy, and release all the excitement, fear, and exaltation damned up inside me. What a day! What a life!

Lorraine Krakow

Internationally Abreast: Roma!
Juanita Peglar, Cheryl Watson, Linda Acosta and Deb Thiessen - September 2002
 

Have you heard the saying "All roads lead to Rome"? Well we never imagined that the rocky road of breast cancer would lead us there!

We four represented Abreast in a Boat at the World Club Crew Championships in Rome, Italy. Known as "Internationally Abreast" our team was comprised of women, all breast cancer survivors, from Australia and Canada. The two other breast cancer boats there were from Philadelphia, (U.S.A.) and Dragons Abreast (South Australia). Together we took our message of hope, support, and friendship to the women of Italy. We were proud to be the example that women with breast cancer can live full and active lives.

Michelle Hanton, our leader and manager from Australia, had contacted Murray Cobban, the Australian Ambassador, to let him know of our arrival in Rome. As a result we were invited to a reception at the Ambassador's residence where we met with the media, physicians, dignitaries and representatives from next year's World Championships in Shanghai. We also met the ambassador's wife, who had recently been diagnosed with breast cancer and was commencing chemotherapy the week we were in Rome. Everyone there was extremely supportive and aided in getting out our message of hope.

Michelle never missed an opportunity to get our message of hope out, nor did she ever miss a photo op or media op. Before our first race she arranged for our team to be blessed by Cambodian Monks. It was a very spiritual chant that left us feeling empowered and very strong.

After one of our first races an Italian lady named Orlanda Cappelli spoke with Linda and asked if she could race with our team. She is a breast cancer survivor who paddles with a mixed team. Linda translated Orlanda's request and by the next race she had become our drummer and remained so for the next few races. She is now very eager to start a breast cancer survivor team in Italy!

For the first time ever a breast cancer team paddled in a 2000m race. No, we didn't place in the top three but the love, support and cheering that we received from the shore line put us first place in the hearts of everyone there. The noise from the crowd was almost deafening and it was very emotional for us. Our final race on Sunday was again very emotional! Our Italian friend Orlanda arranged for roses and all of the breast cancer boats came together to toss the flowers into the water. Again the crowd was awesome and this time very quiet as we took a minute of silence to remember the women who were no longer with us and, as well, those women and their families who are now fighting breast cancer.

During the three days of racing there was a documentary crew who followed us and filmed us at every turn. The documentary should air sometime in the late fall on the Womens' Network. We will keep you posted on the date.

How did we do? We were successful! At the spectacular opening ceremonies it was announced that the first Italian breast cancer survivor team would be formed this year in Rome. It was also announced that that boat would attend and race at the Worlds in Shanghai. So next year will be the first time that a breast cancer dragon boat team has ever raced in Asia. We raised awareness as we were visible anywhere we stood in our hot pink race shirts. We were definitely full of life, we definitely kept up with the Australian women, and we definitely brought home medals! Two Bronze, count 'em, two! Life, indeed, is very full and active! We feel very proud and privileged to have represented Abreast In A Boat and thank you all for giving us this opportunity of a lifetime.

Juanita Peglar, Cheryl Watson, Linda Acosta and Deb Thiessen - September 2002

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